Friday, April 10, 2015

Chapter 2

Much movement in the last three days.
First: the voluminous outpouring of supportive communications and deeds from friends and family.  We are all touched and lifted by your help.
Miles really appreciates all the texts and postings.  Please know that if his response is delayed, he is simply taking a healthy rest.  So feel free to text again, and he will get back to you!
Second: Inpatient activity.
Miles had his port-a-cath placed Wednesday.  This makes blood draws and med/fluid infusions much easier for him (less needles and peripheral IVs).
After some additional baseline testing Thursday morning, he received plenty of pre-treatment fluid hydration.  Chemotherapy started a little past schedule, around 10pm Thursday night.  Overall, he slept well (and he doesn't remember his one strange period of loopiness).  He felt sick for the first time this morning.  The oncology team has fine-tuned his anti-nausea medication, and he is resting now, feeling modestly better.
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Next:
Friday brings more IV hydration, followed by a repeat of the same 2 chemotherapy agents he got last night (adriamycin and cisplatin).  These end overnight, and will be followed by more IV hydration.  The biggest side effect at this stage is nausea, so the team is focusing extra effort there. 
If the current plan sticks, Miles will return home sometime tomorrow (Saturday).
The visiting nurse will be out in the next couple of days to assess the handsome patient, administer some additional medication, and possibly draw some blood.  He has an outpatient clinic visit at the Jimmy Fund Clinic (Dana Farber) Thursday with his medical oncology team.
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More stuff:
Louis is in the house!  Came to visit for the day Friday.  A little hesitant at first, but now doesn't want to leave...we're sure it's in part to be with big brother, and not just all the cool stuff to do.
BTW, this warrants a shout out to Louis' bud Soren, who not long ago logged some extended time at Children's Hospital beating down Lymphoma!  Louis learned a lot from that experience, and we're thinking that experience will help him approach Miles' challenge with a leg up.  Thanks Coopers!  We love you.

7 comments:

  1. Miles, we love you and you are a strong and brave young man. We pray for you every day for strength and healing. We love you, Uncle, Aunt Sarah, Cousins Sam and Benjamin

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  2. Go Miles--you are so strong! And way to be a supportive little brother Louis!

    xoxo Lisa

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  3. Nice work Miles! And way to support your brother Louis! Sending all of my love to you both (and your parents) I'm thinking about you all the time, and I am so impressed by your strength and bravery!
    All my love,
    Emily Kluun

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  4. Hey gang! It sounds like you've got this thing dialed - in attitude alone. Take it one moment at a time, Miles! That positive attitude is one of your best medicines. You get a big high five! I'm thinking shrinking thoughts for June. Louis rocks! Nothing beats a brother visit in the hospital (I have funny stories I can tell you about those!) Keeping you all close in my thoughts. Sending big hugs! "Half-Aunt" Jen :)

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  5. Miles, this is a shout out from your California family. We met you last summer at the Goldberg familying reunion in Michigan. We shared the motel with you, Harley. and Roy. we all enjoyed meeting you and your brother. Keep up your spirits. We'll be following your blog as well. It sounds likeyou are a real trooper. Hugs from the Millers.

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  6. Hi Miles. Sending love and support your way. I see you have a winning attitude. Add to that the love and care from Mom, Dad, Louis, and the many well wishers I see here and your bases are covered. Hope you feel all the positive vibes. Hugs! ��

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  7. Hi Miles, Thinking about you and sending Huge Hugs (YUCK I KNOW) and high fives. I was sky-ping with Max this morning and he discovered if he spins in circles he gets dizzy and then can't walk which he thought was very funny so then he had a laughing fit. He kept doing it over and over, it was pretty funny and I think would have made you smile and probably join him. I hope you are home soon. Love safta

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